Thursday, November 26, 2009

Thankful.....



Wait on the lord; Be of good courage, and He shall strengthen you heart; Wait, I say , on the Lord! Plalm 28:14

Thank You for everyone’s prayers! A time to be thankful, thankful that we have each day to spend together. As I stated in my previous post, yes Jacob did have Leukemia blasts in his CNS. This stupid cancer just does not stop, but with the help of everyone’s prayers we will move mountains. So back to the spinal Jacob had on Monday, (11/16/09) we of course also gave chemo and we also had no more headaches or nausea after the spinal. But that only lasted for about 2 days :O/ of course I am thinking OMG the chemo is not working! We were not set for the next spinal until Monday the 23rd, still 4 days away. But the Dr did not want to wait till then so she got Jacob in on Friday the 20th to see what was going on and to give more chemo. We of course got the news I wanted to here, the chemo is working and we found out the chemo was causing inflammation in his spine which was causing the headaches & nausea this time, one step forward! So with the spinal we just had on Friday he is now taking steroids that will help with the inflammation and gives him a lovely personality, LOL! Jacob is doing well, just a bit moody, but this morning was the last dose of steroids.

Please keep a little 5 yr boy in your prayers, his name is Hunter I meant them about 1 ½ weeks ago. They just found out he had Leukemia and in the last couple of days they found out he has a fungal infection. They are traveling down the same road we were on in Sept. I talk with the dad tonight, everything is still a blur for them, and he of course is confused and has lots of questions and was very grateful that he had a chance to talk with me. Sometimes talking with others that have been through what they are going through helps a lot.

I hope everyone has a great Thanksgiving!
I count my blessings each and every day!

Thank You for keeping our little Jacob in your prayers,
Melisa

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.

Monday, November 16, 2009

Quick update...................

I am so tired, frustrated & disapointed. We did find Leukemia blasts in his spinal fluid, we treated with chemo and will do so again next Monday and we WILL KILL the cancer from his spinal fluid. This makes this the 2nd CNS relapse.

THANK YOU FOR THE PRAYERS!!

Melisa

Sunday, November 15, 2009

Speed bumps turning into pot holes


Wait on the lord; Be of good courage, and He shall strengthen you heart; Wait, I say , on the Lord! Plalm 28:14

Always asking for prayers, something I so believe in!! How things change in a day! I was so glad to see how well Jacob has been doing and then, BAM!! Last Thursday Jacob started to have Nausea and Headaches, this happened right after I gave him his antibiotic. I thought maybe it was from that, but it happened the following day and that was with no meds. So off to clinic we went. Of course there was not much they can do, could be viral but we have to rule out relapse in the central nervous system (CNS). This might sound bad, but, I have already accepted it if it is CNS relapse. I just want to find out what treatment we are going to follow and get past this speed bump. All the speed bumps we have been having are starting to feel more like pot holes. But as I see it, pot holes can be fixed and that is what I want to do! So please all my prayer warriors, pray that this is NOT a CNS REPLASE! We have to be at the hospital at 7:20am in the morning with the spinal being at 9:30am. I will try to update as soon as I can.

I count my blessings each and every day!

Thank You for keeping our little Jacob in your prayers,

Melisa

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.

Monday, November 9, 2009

Beautiful Smilling Face :O)

Wait on the lord; Be of good courage, and He shall strengthen you heart; Wait, I say , on the Lord! Plalm 28:14

I have to wonder sometimes where does my strength come from and the power to keep going, I look to God! Also being a Mother gives you unbelievable strength and power that will move mountains! So here is to all you Mothers!!! We watch our children grow so fast, no parent ever imagines they have to watch their children suffer with a life threatening issue of any kind. But it does give us a whole new meaning of “LIFE”
When your child says: when I grow up, why does it hurt, what’s wrong with me, am I going to get better? It brings tears to your eyes and you try not to start to cry uncontrollable. The future is what we hold on to. There are now, so many words that pull your heart right out of your chest. Some of the littlest things, like the cell phone messages that Jacob might leave, I make sure they are never deleted. We are to always move forward, it’s that beautiful smiling face that makes it all that much easier.

Jacob’s, Dr apt’s are weekly or more, it is suppose to be for weekly chemo. Last week we had Methotrexate (chemo) not even the full dose (100ml), what they had suggested, Jacobs Dr did not want to do the whole dose, only half, glad she chose that. The chemo had whipped him out completely. Not to mention the nausea and the headache the night of :O( So we had his Dr’s Apt today for blood work and to see about starting his next chemo on Thurs. Well because the Methotrexate whipped him out, no counts, we stop all chemo until his body starts to recover and we go in tomorrow (Tuesday) for Platelets and maybe blood. Jacob is feeling good, I think it took about 4 days for him to recover from last weeks chemo treatment.

Each day is a blessing!

Thank You for keeping our little Jacob in your prayers,
Melisa

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.

Tuesday, November 3, 2009

Week by Week


Inner Strength
My strength sometimes amazes me
As I handle all the pain and carry heavy burdens, I hold joy, sadness, love and optimism.
I paint on a smile, when all I feel like doing is screaming from the top of my lungs.
I sing songs of praise, when I feel like crying, cry when I am happy and talk to myself when I am afraid.

I really don’t know where to start, I am sorry for not posting sooner. I did not mean to have people worrying. This CANCER rollercoaster we have been on is just crazy, if I jump with Jacob, who will catch us? God! He has led us through thus far, and the ever so POWERFUL PARYERS that have continued for our Jacob, and for that I thank each and every one of our prayer warriors!

We did slow down on giving Jacob the stronger chemo’s due to the fact that the CT scan showed that the Fungal Pneumonia had left good size cavities (holes) on his lungs and the Doctors want those to heal completely before we really start to go with the stronger chemos. So we are going week by week, doing blood work and giving different chemos once a week keeping the Leukemia at bay and trying to let his body heal Completely. We are going to keep Jacob healthy while controlling the Leukemia for approx. 5 more months before we think about transplant, scary thought. My first thought, can we make it that far?!?!? Yes, I can’t and won’t have it any other way!

Jacob has been feeling really good, thank God! We had a chance to go to the pumpkin patch, he enjoys that every year :O) Halloween was a blast, we first had a hospital party with little trick a treating stations for the kids, Jacob had a blast. Kaiser really did a good job. Then we had Halloween, considering it was on a Sat. all the neighbors dressed up and we all enjoyed each others company and just had fun. Of course Jacob got to go trick a treating to some houses with his little girlfriend Bianca :O) It was a good day for Jacob, I so appreciate every single one of these days!

Thank You for keeping our little Jacob in your prayers,

Melisa

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.