Tuesday, September 29, 2009

Can I just say WOW!!!

I could only pray that things continue to get better and we keep moving forward!

We did have clinic on Monday for blood work, I thought we would just make sure his counts look ok and that he would not need blood or Platelet transfusions. Well he didn't, his body is recovering from the terrible fungal Pneumonia and fighting it's own battle. WOW I am so pleased to here this. The Dr's said he looked so good that they wanted to do another chest x-ray so they can really see what we are looking at and to see what are next step was going to be. WEEEELLLLLL his lungs are almost all clear, there is only one little spot, so much better from 7 days prior from when we got out of the hospital :O) So to my surprise and so glad to here that we are going to start where we left off on his chemo. So today (Tuesday) we went to get Jacob's chemo and also tomorrow (Weds). So now we are back on track, praying that we hit no more road blocks and hit remission.

One last note, there were peoples out there, sad to say even some Dr's, you know who you are! That they really thought because of the pneumonia being Fungal and Jacob still not being in remission with no Immune system that there was really nothing we could do for Jacob. We were even told this by one of the Dr's, can I just say one thing...............IN YOUR FACE!!!!!! LOOK AT MY LITTLE JACOB NOW!! He was not going to give up there for there was no way I was going to give up, did not even cross my mind. AND DON'T YOU EVER FORGET THAT! The next time some one sends me an e-mail like that I will not be that nice about it.

Thank You so much for so many more people keeping Jacob in your prayers and sending encouraging words our way, it really does mean the world to us.

Melisa

Saturday, September 26, 2009

It's the Miracles you have to believe in


After weeks of battling Jacob’s Fungal Pneumonia and high temps and not even knowing which direction he was going during the first week into the second. It was so hard to watch your child feel so miserable not wanting to talk, eat, just sleep and watch TV. At one point we started having blood pressure issues witch was due to all the fluid he was retaining, (7 lbs of fluid) When these Kids with no immune systems get Fungal Pneumonia it is just so hard for there already weak little bodies to fight, and what they have for them now is the anti fungal medicines; even then it is so critical. With each X-Ray we so just a little improvement each time, this was nice to here, at least he was not going backwards. We had to go day by day with Jacob, not knowing is the hardest, after about two weeks I started to see little improvements with the way he was acting and slowly starting to get his appetite back, but with the fevers that kept coming back and spiking at 104 was really scary, I just prayed they would stop and to see him get better. There was one morning when we saw the most improvement, it was just over night when we saw his stats level out and his personality started to change, it was a Miracle!!! It was all the prayers that were being said for Jacob. We were never to give up HOPE, and have the FAITH that we were going to move forward. 3 wks after being admitted we were going home, something that would not have been possible with out Dr Horvath (the one Dr that never once gave up HOPE) and the Nurses that fought over who was going to take credit for Jacob’s improving Health :O) Its was all of you, THANK YOU!! Now that we have been home for about a week now Jacob is doing so well, his legs are really weak still, but getting stronger with each day. I can not believe what we have been through, every ones prayers and words of encouragement helped us get through this time, THANK YOU!! Doing this whole time we have not been able to treat his Leukemia, just another scary thing for me, I just pray, pray and pray that that stays under control until we start up chemo again. I hope this starts up soon, I am being told we will probably start up slowly in the next week or so. Please pray that Jacob stays healthy and his Leukemia stays at bay.
Thank You so much for praying for our precious little Jacob!!
Melisa

Monday, September 21, 2009

The only direction is FORWARD


Saturday, September 19, 2009 9:53 PM

Jacob has had some good days, but fevers had been spiking to 104 for days now, we are slowly seeing some improvement on his x-rays but the fungus is just sitting there with little change. but at least we are moving a little forward with each day. In between the fevers yesterday(Friday) Jacob had a good day even played some nerf guns with Taralyn, they just had too much fun shooting all the other nurses :O) We even thought we might get out of here on Thursday, but he spiked a 104 temp and then we were chasing 100 to 101 fevers the rest of the night and most of the day, well needless to say we did not get to go home :O/ Jacob still has such a long road ahead of him trying to get his body to start fighting on its own so he can be completely healed from this pneumonia and we can start moving forward with his Chemo treatments. Today was another good day and fever free all day. Compared to the way Jacob was last week to this weed is nothing short of a Miracle!!! They say 10 or even 5 years ago survival would have been rare!!!. Our little Jacob proved to every one how strong he really is!!! NEVER UNDER ESTIMATE THE POWER OF PRAYER AND MIRACLES!
Please pray for no more phemonia and moving forward soon with his chemo treatments

Thank You for keeping our little Jacob in your prayers!

Melisa

Tuesday, September 1, 2009

What else will be thrown at us!!!

Well the x-ray from yesturday was a little iffy so Jacob had a CT today to make sure on what they thought they saw and yes it was Pneumonia . What else is going to be thrown at us!!! He already has no immune system and now he has Pneumonia, UGH! He is doing well, he has no symptoms other than the fever. So here is a scary thought, we are holding off on his chemo. Every thing we have been though I hate the thought that we have to go 7 to 10 days without his chemo treatmeant. We are going to re-do the CT scan on Thursday and pray that his lungs are clear.

LIGHT THE NIGHT, Team name is Jacob's HOPE, it is that time again, time to raise money for blood cancers. So who ever can make it and donate or just help out with what ever donations, that would be great!!
http://pages.lightthenight.org/ocie/InlandEm09/jacobshope
Please let me know if you are interested in a Jacob's HOPE T-shirt, my e-mail melisncal@aol.com I am tring to get an idea of how many people actually want one, they are going to be $10 to $15 some where around there.

Thank You for keeping our little Jacob in your prayers!
Melisa